Sibs,<\/p>\n
Well, folks, you can pretty much forget the nice, orderly, compact plan I described in my Chemo Update #5 for the Bone Marrow Transplant process to begin with a disability leave from Burton Group on September 17th. {sigh}<\/p>\n
Thursday morning I got a call from an \u201cappointment scheduler\u201d from UofM, advising me that she had 9 appointments to schedule for me over the next _2_ weeks, beginning with an appointment TODAY. These 9 appointments did not include the regularly scheduled Tuesday\/Friday chemo infusions, nor the new referral to an Orthopedic Surgeon regarding the hip\/pelvis pain, nor the week of self-injected Nuepogen, nor the week of harvesting my stem cells. Obviously, this is a huge yank for a guy who is still working full time and trying to tell his employer when he is going to \u201cgo dark\u201d on them, and a wife who is trying to keep her employer apprised of when she will begin a family medical leave.<\/p>\n
Here\u2019s the news since Wednesday\u2019s official update \u2013 I cannot even gather them into good news\/bad news categories:<\/p>\n
\u2013 Have scheduled the 9 appointments into the next few weeks. Moderate disruption some weeks but the week of Labor Day and the week of 9\/17 are pretty much wiped out (all out-patient stuff)<\/p>\n
\u2013 Today\u2019s last-minute-added appointments changed a \u201croutine chemo day\u201d into an all-day event at UofM. Irene and I were in the hospital from 8:00am to 4:00pm<\/p>\n
\u2013 Had my Pulmonary Function Test (lung capacity and efficiency) today, passed with flying colors<\/p>\n
\u2013 Met with the Orthopedic Surgeon today and decided to proceed with kyphoplasty surgery which will insert cement into my L3 vertebrae and prevent further collapse of my spine, and perhaps {educated guess} solve the hip\/pelvis pain problem. Kyphoplasty to be accomplished within the next 3 weeks (another calendar disruption)<\/p>\n
\u2013 Today\u2019s chemo went well. I got the Neupogen injection they forgot on Tuesday.<\/p>\n
\u2013 Today marks the end of 17 weeks of chemo. Only one chemo week left!!<\/p>\n
\u2013 Learned that my Bone Marrow Transplant admission has slipped from 9\/24 to 10\/1<\/p>\n
I am now dealing with 8 different medical departments for tests and procedures! I have an assigned BMT Coordinator \u2013 whom I had not heard from in 2 months \u2013 who is supposed to lead me through all this\u2026 but yesterday\u2019s scheduler call should have been preceded with some education as to what\u2019s happening and how soon. Do I sound a little frustrated?<\/p>\n
Pollyanna has left the building!<\/p>\n
-larry<\/p>\n","protected":false},"excerpt":{"rendered":"
Sibs, Well, folks, you can pretty much forget the nice, orderly, compact plan I described in my Chemo Update #5 for the Bone Marrow Transplant process to begin with a disability leave from Burton Group on September 17th. {sigh} Thursday morning I got a call from an \u201cappointment scheduler\u201d from UofM, advising me that she […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[8],"tags":[],"_links":{"self":[{"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=\/wp\/v2\/posts\/9"}],"collection":[{"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=9"}],"version-history":[{"count":0,"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=\/wp\/v2\/posts\/9\/revisions"}],"wp:attachment":[{"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=9"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=9"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/blog.larrygauthier.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=9"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}